By Jessica Picanzo, Andi and Aaron’s mom

This is Andi and Aaron Picanzo. Andi is four years old and Aaron is two. They love to sing, dance and play! When Andi failed the newborn hearing screening, we were encouraged to have genetic testing done to find out the cause of her hearing loss. We learned when Andi was eight-months-old that she has Usher Syndrome type 1F. Aaron was born with the same syndrome. They are both very smart and thriving with the use of their cochlear implants. Finding a cure for Usher Syndrome would mean the world to our family and give Andi and Aaron the chance at a normal childhood and life without having to wonder when their world will go dark. We are desperate but hopeful for a cure for our children.