Volunteers are integral to our quest to fund critical research. We are grateful for your support.

We welcome help from Usher 1F families and friends with our efforts to find a cure. Please email our Usher 1F Ambassador, Dorie Shapiro or fill out the form below. We hope you can help by raising awareness or fundraising – together we can accomplish great things! Contact Dorie to learn how family and friends of people with Usher 1F can help.

If you have an idea for a fundraiser, we will be happy to create a personalized fundraising page for you. Click on these examples to see ideas from some of our creative families.

Donate your birthday to Usher 1F Collaborative via a Facebook birthday fundraiser. 

Be sure to create a personal message. It will generate far more donations than using the generic Facebook message.

See our Facebook page

or click here to directly to create a fundraiser.

Bonus - Facebook does not charge a fee. 100% of donations raised through Facebook go to support Usher 1F research.

Contact Information
First Name *
Last Name *
Address Line 1 *
City *
State/Province *
Postal Code *
Additional Details