More great coverage of the #Usher1FCerealChallenge? Go Zachary! We will do this for you and for everyone with #usher1f! Thank you WJLP for covering this story.
More great media coverage for Usher 1F Collaborative and our Cereal Challenge!
Dorie Shapiro won't let Usher Syndrome Type 1F keep her down.
"Atlantan Karen Garber Shulman and her husband Matt understand what it means to be a friend where distance is not a barrier. They are supporting their University of Arizona college friend Jared Root and his wife Rachel who have a personal family mission that spans the miles.
"The Roots are parents of a 9-year-old son Zachary, who was born deaf and has a genetic disease that affects Jewish children. This New Jersey Jewish family brainstormed the idea with their friends to raise awareness and funds for research into Zachary’s condition. They created the Cereal Challenge, which offers a small taste of what life might soon be like for Zachary. The challenge, sweeping social media, asks people to blindfold themselves and make a bowl of cereal."
More coverage of Zachary and the #usher1fcerealchallenge!
Zachary Root and his family talk about the #usher1fcerealchallenge and Usher 1F on TV in New York.
New Jersey News 12 covers the Usher 1F Cereal Challenge.
ABC News 7 NY covers the Usher 1F Cereal Challenge with the Root family of NJ.
A new internet challenge is giving people a small taste of what life might soon be like for a North Caldwell boy in danger of losing his sight.
The family of Zachary Root, who was born deaf and diagnosed with Usher Syndrome, say they're now in a "race against time" to raise donations – and awareness – to slow his vision loss, a potential symptom of the rare, genetic disorder.
So far, the family has raised more than $48,000 towards their $100,000 goal. Learn more or make a donation here.
"A United States-based non-profit foundation, the Usher 1F Collaborative received a $450,000 grant from the “Rare as One” project launched by the Chan Zuckerberg Initiative (CZI). The CZI was established in 2015 by Facebook CEO Mark Zuckerberg and his wife, Dr. Priscilla Chan."