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About Us

Usher 1F Collaborative is a patient-led research network. The research is driven by a group of patients and their families working together to achieve a cure. No one better understands life with Usher 1F or is more motivated to find a cure than our patients and their families. Working together, we bring attention to Usher 1F and engage our investigators to work toward an effective treatment. Together we are changing the status quo.

"There are countless mothers who rise each day determined to move mountains.
~Philip Reilly, Orphan

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