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Usher Syndrome is the leading cause of inherited deaf-blindness, and type 1 is the most severe. Children with Usher 1 are born profoundly deaf and progressively lose their sight.


Usher 1F Collaborative is a 501c3 nonprofit foundation whose mission is to fund medical research to find an effective treatment to save or restore the vision of those with Usher Syndrome type 1F.

$3.1 million in grants by Usher 1F Collaborative
$2.6 million raised by our researchers

Chan Zuckerberg Initiative Rare As One Project Grantee