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About Us

Dorie Shapiro

Dorie Shapiro

As a young adult with Usher 1F, Dorie Shapiro has been a tireless and enthusiastic advocate for Usher 1F Collaborative, working with us to raise funds for a cure, including holding multiple fundraisers on her own. In her position as Usher 1F Ambassador, she serves as a liaison between the Usher 1F patient community and families with the researchers and the Board of Directors.