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Frequent Questions

Who We Are

Have you ever had a question and didn’t know where to find the answer? If so, you’ve come to the right place.

This section is a compilation of answers to the questions most commonly asked about Usher 1F. Just start by following one of the links below. If you can’t find the question you wanted to ask, don’t hesitate to contact us.

  1. Our organization funds medical research to find a cure for the vision loss of Usher Syndrome type 1F. We also work to raise awareness of the disorder. For a list of specific programs and services we provide, visit our What We Do section.

  2. We always need help with fundraising and raising awareness, whether it's hosting one of our annual Sight.Sound.Cycle events, running a race and collecting sponsorships, having a local restaurant donate a portion of its profits for the night, or simply talking to others to let them know about Usher 1F and the need for a cure.

  3. Nearly 100% of donated funds go directly to fund medical research for a cure. We are an all-volunteer run organization using our own home offices, cell phones, etc., so that we minimize costs. We have a responsibility to our community and our donors and work hard to ensure long-term sustainability of the organization. We make our IRS Form 990 available for review, as required by law.

  4. What is your organization's privacy policy?

    Our organization takes our privacy policy seriously and takes steps to protect and ensure the safety of our supporters. We do not sell or otherwise disclose information about our volunteers or supporters outside of our immediate organization. This policy has no exceptions. We do not sell or exchange your information with any other organizations, public, private or nonprofit.

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